Maria Berghs has led research into sickle cell in Sierra Leone, West Africa. Working with the Sierra Leone Sickle Cell Disease Society, Freetown, Sierra Leone and Sickle Cell Carers Awareness Network, Koidu, Sierra Leone, the research focussed on women’s experiences with sickle cell disease (SCD) – either as mothers of children with SCD or as women living with SCD themselves.
An accessible report with policy advice can be accessed here: https://dora.dmu.ac.uk/bitstream/handle/2086/18092/SIERRA%20LEONE%20Gender%20and%20sickle%20cell%20report.pdf?sequence=3&isAllowed=y
Berghs M, Dyson SM, Gabba A, Nyandemo SE, Roberts G and Deen G (2020) “You have to find a caring man, like your father!” Gendering sickle cell and refashioning women’s moral boundaries in Sierra Leone Social Science and Medicine https://doi.org/10.1016/j.socscimed.2020.113148
The work in Sierra Leone has also produced a Guide to School Policy on Sickle Cell a guide that was also turned into a popular “Sikul Sel” song by local musician Sam Macauley