Increasingly, we have also been focusing on how people understand and make sense of having sickle cell and thalassaemia trait (being a genetic carrier) which is different from having the genetic condition. We give advice on these issues, look into the history of past discrimination which we need to be wary of and also try to ensure that younger generations are informed but do not encounter stigma.
de Chavez, A. C., Atkin, K. M., Babbington, F., Berghs, M. J., Dyson, S. M., Miller, A., & Whitelaw, D. C. (2020). Incidental Findings of Sickle Cell Trait From an Everyday Diabetes Test: Should General Health Care Providers and Testing Centers Report, Retest, or Refer?. Clinical Diabetes, 38(1), 101-107. https://clinical.diabetesjournals.org/content/38/1/101
Dyson S.M., Ahmad W.I.U. & Atkin, K. (2016) Narrative as re-fusion: making sense and value from sickle cell and thalassaemia trait Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 20(6): 616-634 [ISSN: 1363-4593] http://dx.doi.org/10.1177/1363459316660861